Research

New! UCC Pilot Study 

We are delighted to announce the launch of our pilot study "Tracking Parkinson’s Disease (PD) symptoms, medications, and menstruation"  in collaboration with researchers from of Department of Anatomy and Neuroscience, School of Medicine at the University College Cork, Ireland. Sign up to the study. 

Menopause & PD Research

We have collaborated with Dr Eva Bunting of Princess Royal Hospital in the UK in a research survey into the experience of women living with PD and the perimenopause/menopause. Please complete the survey to help us understand more about PD & the Menopause.

Women with Parkinson's & Working Survey

The European Federation of Neurological Alliances (EFNA) recently reported that 70% of women said that managing their neurological condition led to missed days from work. A recent paper looking at lost employment due to Parkinson's found that those diagnosed early in their career faced 20 years of lost earning potential. Many reported dexterity, eating, sleep, fatigue, and anxiety as factors for leaving work. 

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My Moves Matter have created our own survey to see the impact of Parkinson's on working in employment, at home and as a carer. Please complete our anonymous survey to help raise awareness of the specific work related issues facing women. 

New! Pilot Study in France 

We are delighted to announce that we are partnering on a pilot study funded by France Parkinson. The study will be run in 4 neurology centres in France and will involve women with Parkinson's using a French version of the My Moves Matter app to track their medication and Parkinson's symptoms in relation to their menstrual cycle. It will also involve an intervention arm where women who show worsened symptoms around their menstrual cycle will be offered treatment and then will track the effect of this treatment in the intervention arm of the study. We are delighted to work on this first of its kind study with Professor Elena Moro, president elect of the European Academy of Neurology. 

Unmet Needs of Women with Parkinson's

Six women researchers, of whom five are doctors of medicine and three are living with PD, published a review article in the journal, Movement Disorders, titled, “Unmet Needs of Women Living with Parkinson's Disease: Gaps and Controversies” (Subramanian et al., 2022). They sought to rigorously evaluate and document the current knowledge, gaps and possible strategies to address the unmet needs of women living with PD, with a focus on the clinical and psychosocial aspects. You can listen to Professor Subramanian who is the lead author and a member of the My Moves Matter Clinical & Research Advisory panel talk about the key findings