You can change the future care
of women living with Parkinson's
We are recruiting women of all ages for this study from anywhere around the world to understand the impact of different hormonal life stages on Parkinson's symptoms. ​
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Women have the unique challenge of navigating Parkinson's whilst going through many hormonal stages in life whether menstruating, pregnant, going through the menopause transition, menopausal or finished with the menopause.
This a first of its kind study, in collaboration with researchers from University College Cork, Ireland.
In Collaboration with
Women of any age with PD can take part
Please join the study if you are a woman with PD who is:
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Pre-menopausal (i.e. still menstruating even if irregular or on contraception)
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Pregnant
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Peri-menopausal (even if still menstruating or on hormone therapy)
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Menopausal (even if on hormone therapy)
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Postmenopausal (even if on hormone therapy)
What do you need to do?
Step 1.​ Click here to sign up to the study. You will set up a study ID which you need to take note of to enter into the My Moves Matter app to take part in the study.
Step 2. ​Once you have signed up to the study then click here to download the My Moves Matter app. You need to do this on your mobile phone or ipad.
Step 3. ​Once you have downloaded the app. You then need to set up your profile by clicking on the My Moves Matter logo on the front page of the app. Enter your details and press save at the bottom of the profile page.
Step 4. ​Enter your UCC study ID that you set up when you consented to the study into the box that says Clinical trial ID which is at the bottom of the profile page on the My Moves Matter app.
Start Tracking
Once you have consented to the study and completed the first survey and entered your UCC study code we ask you to set up your medication cabinet and medication reminders on the app.
Click here to see explainer video on setting up your medication cabinet.
You then just start tracking your
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PD symptoms
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medication
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periods, if you are still having periods, even if erratic
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To see if women are experiencing fluctuations of their PD symptoms across their menstrual cycle we need you to track daily for the next 4 months because menstrual cycles can vary and we need enough cycles in order to see if there are any patterns.
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We also need those women who are pregnant, perimenopausal, menopausal or post menopausal to also track daily over 4 months so that we can compare PD symptoms and medication usage across the different hormonal stages.
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When you feel well with your PD you may be less likely to track as often, however in order for the researchers to see
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any patterns across the menstrual cycle
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any impact of other hormonal stages on PD symptoms
it is as important for you to track when your symptoms are mild as when they are severely affecting you every day for the 4 months.
2. Track your PD symptoms. Click here for explainer video
3. When you start your period, simply track all the days of your period during each of the 4 months. Click here for explainer video.
1. Track your medication intake.
4. There is an option to track exercise, this is optional.
5. There is a journal which you can use, this is also optional.
Final surveys
When you have finished tracking for the 4 months you will be sent two final online surveys to complete.
Support
If you have any queries about the study you can email UCC using PDstudy@ucc.ie. If you have any queries about using the app you can email richelle@mymovesmatter.com.
Your data
Only your medication, PD symptom and period tracking data will be shared with the researchers and all data is anonymous. If you choose to use the exercise tracking it will also be shared but anything you add to the journal will not be shared.
After the study
After you complete the study, you can keep using the app for free and you will be able to see all your own tracked data from the 4 months.
